Jessica Bernstein

The Diabetes World Jessica Bernstein

This study examined the impact of early onset Type 1 diabetes on the development of the self and identity in 20 adults age 20 or older who were diagnosed at age five or younger. This study aimed to provide insight into the intrinsic effects of a chronic illness, as distinct from the adaptive process that occurs when a person is diagnosed later in life. The study employed a qualitative approach of descriptive research in which systematic descriptions of the data were provided. This study found that participants generally felt fortunate to have developed diabetes at a younger age, as they did not have to cope with the process of adjustment. Respondents mostly reported that the diabetes had become integrated into their sense of self. A number of character traits were thought to have developed such as: being cautious or disciplined; feeling greater appreciation of health; being proud of surviving so long; developing inner strength; and feeling greater appreciation for life. All of the participants expressed having felt some degree of difference when interacting with people who did not have the condition. Some respondents felt that their differences made them special.